Big news today. We are moving out of the main NICU and into a transition room. This is where Casey and I will stay from now on, with Lucille!!! We are so excited, and slightly terrified, about having her with us 24 hrs a day. She will still have her IV and will continued to have her heartrate, oxygen saturation and respiration monitored in the room, and any problems will show up on the computer in the nurse's station. But as far as day to day care Casey and I are now officially in charge.
She continues to struggle a bit with her eating, so there is no telling when we will take the final step from transition to home. Her digestive system is having a hard time catching up with the rest of her body, but she is making progress. She continues to pee and poop on her own, but the food seems to upset her stomach which continues to make her uninterested in food. I would say on average she takes half of her food by mouth and the rest by tube.
We are amazed at how far we have come from a week and a half ago, and excited about how well Lucille is recovering. She is such a strong little monkey and we can't wait to see how she amazes us in the months and years to come.
Eleanor came and had a sleep over with me last night in the hospital sleep room (or shall I say closet). We had a great time. She got to visit with her littlest sister a bit, now that she's over the flu, and we watched a movie together in bed while eating free hospital snacks and juice. Her favorite part was our breakfast in the cafeteria this morning before Casey came and picked her up for school.
Violet is doing well, too, but obviously misses her Mom and Dad a lot. Casey stayed home with her last night and they slept in the big bed, she was so happy to "nuggle with Daddy". She has yet to meet Lucille, which is heartbreaking. One of these days all three of our girls will finally get to be together, and I am going to cry like a baby myself. I cannot wait to finally get a photo of all of them, Eleanor, Violet & Lucille.
Hope everyone is well!
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9 comments:
Your newest addition is as beautiful as the rest of your family! We are saying our prayers that soon she will be able to go home and make your house complete. Our best to you all.
Shawn and David Avila
A sleepover....how precious is that. I bet Eleanor will remember that night and morning as a favorite moment in her life. You are such an incredible mommy (and friend)!! And of course...Casey rocks in the dad category! I am so excited about Lucille's progress. I know that you all are so proud of her. We can't wait to have the chance to see her again, and all of you. Love you all very much!
Hugs and kisses to you all,
Kelly
Could you have imagined she would be doing so well after that rough start? What an amazing and strong little girl. Good luck in the days to come. I know she will do great. Much love to you and the family.
Conner fam-I love you guys so much and think about you every day! You have an amazing, beautiful family! Thank you so much for taking the time to update your blog. Since I can't be there in person, please know that I am there in spirit and prayer.
love-Tisha
Hi Conner Family,
Just wanted to say hello and let you guys know that we are thinking about you. Lucille is and will be in our prayers daily. It sounds like things are going realy well. Thats great news getting to move into a transition room, hope she comes home soon. Lucille is in Gods hands and everything will be just fine. If God brought you to it, he will bring you through it.
Love you guys, let us know of anything we can do.
Richard, Rhonda, Brooke and Sydney
Hi everyone! I'm so sorry it has been so long since we have seen you guys! I have not seen Violet since she was a newborn...wow! Congratulations on the newest addition and we are so glad everything is going well for her. You are in our prayers and we love you!
Keri and Daniel
A Sleepover! That sounds like fun! I'll bet Eleanor is ready to help take care of Lucille when she gets home. It will be any day now that all your babies can be at home with their mommy and daddy!
Tell that tough little monkey we love her!
Claire and Daniel
Katie and Casey,
We are so relieved to hear this great news about Lucille. It is precious how much Eleanor and Violet already love her and I am sure they will be instrumental at helping Lucille progress as she should. We are thinking about you everyday and will continue to look for all new updates about your newest baby girl. I think I will cry when I see a pic of all three of them. It will be amazing. All our love,
Julie, Dave, Ella and Evelyn
Hi Katie and Family,
Please know your HH Family is thinking about you. We know you have lots of good help. Madi and I would love to play with the girls for a day or overnight. I am also available most days to help at your home please let me know if you need help. I'm bringing dinner this week and I would love to know what you or the kids are hungry for.
Love and Blessings Glennda, Keith and Madi LaChance
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